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Program for Research and Support for Rett Syndrome

Our Mission

The mission of the Program for Research and Support for Rett Syndrome at Monmouth University is to provide support, education, and treatment services to persons with Rett syndrome and their families. The program also provides a location for professionals, advocates, and students to unite in conducting cutting-edge research and providing communication, speech/language, and swallowing assessment and treatment for persons with RTT. The program was created and is led by experienced faculty and engaged Monmouth University students who are passionate about supporting the Rett syndrome community.

Services at Monmouth University

  • Assessments and consultations for speech, language and communication, including augmentative communication services
  • Affordable speech and language therapy
  • Communication coaching for caregivers and professionals working with person with RTT
  • Support services for family members
  • Continuing education for professionals, students, and family members
  • Develop and conduct faculty- and student-led investigations related to communication, speech, swallowing, and treatment for persons with RTT
  • Support groups for families

Upcoming Webinar

Rett Syndrome Program Webinar: International Clinical Guidelines for the Management of Communication in Individuals with Rett Syndrome - to be held on June 6, 2022.

International Clinical Guidelines for the Management of Communication
in Individuals with Rett Syndrome

Monday, June 6, 2022
4 to 7:30 p.m.
Presented on Zoom

QR Code for Rett Syndrome Webinar on June 6, 2022. Scan or click Click to access online registration and payment form.

Scan or click code for online registration form.

Rett Syndrome (RTT) is a neurodevelopmental disorder that primarily effects girls. Symptoms begin to appear at about 6 to 18 months of age after a period of apparently normal early development. Regression follows, causing loss of speech, motor control & functional hand use.

This online half-day session is designed for both parents and professionals. Theresa Bartolotta is a speech-language pathologist and the co-author of “Rett Syndrome Communication Guidelines”. This session will focus on communication strategies for individuals with Rett syndrome and complex communication disorders.

For information please contact Trish Bartlett at or call 732-263-5487.

Cathleen A. Givney, M.S., CCC-SLP

Chair/Specialist Professor

Photo of faculty member Cathleen Givney 2021

Patricia A. Remshifski, Ph.D., CCC-SLP

Program Founder/Advisory Board Member

Theresa Bartolotta, Ph.D., CCC-SLP

Program Founder/Advisory Board Member

Webinar Presentation

MU Rett Syndrome Parent Support Group: Ask Me Anything with AAC Regional Consultants

At this March 31, 2022 event, regional consultants from leading AAC vendors were invited to address any parent/caregiver questions (e.g., how to find device access, what support systems are available).

Learn More About Rett Syndrome

RTT Quick Facts

  • There are an estimated 200 persons in NJ living with Rett Syndrome
  • RTT occurs in approximately 1 in every 10,000 live female births
  • Predominately affects females
  • RTT is a clinical diagnosis; most cases have a genetic mutation in the MECP2 gene on the X chromosome
  • RTT results in significant challenges in speech and motor control
  • Individuals with RTT are typically unaffected at birth. Symptoms usually develop sometime after the first birthday.
  • Seizures and scoliosis are common, along with other neurological and physical challenges.
  • The third Tuesday in October is NJ’s Rett Syndrome Awareness Day
  • Purple is the official color to wear in recognition of Rett Syndrome.

Learn More about the Program for Research and Support for Rett Syndrome

Online Resources